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Genetics and privacy 总被引:1,自引:0,他引:1
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Jonathon Penney 《European Law Journal》2019,25(2):122-139
Can the European and American privacy divide be bridged? Bilyana Petkova, in this issue, offers compelling reasons to be sceptical. One recent solution, advanced by Pierluigi Perri and David Thaw, is that common concerns about chilling effects can bridge that divide. However, their discussion of chilling effects was narrow and their analysis limited to procedural transatlantic convergence. This essay explores this idea with a more systematic and sustained discussion of chilling effects theory and research, while arguing that chilling effects does, in fact, provide possibilities for substantive transatlantic privacy. I argue that “chilling effects” is often treated as an ahistorical singular idea but there are, in fact, three separate paradigms of chilling effects theory, research and understanding: (1) speech; (2) privacy and autonomy; and (3) collectivist. I set out each and argue that the conceptualisation of chilling effects exemplified by the second paradigm—focused on privacy‐related chilling effects—offers a shared normative and theoretical foundation to bridge the transatlantic privacy divide. I also explore how new chilling effects theory and research can impact substantive and procedural transatlantic privacy efforts, including re‐thinking consent; empowering stronger judicial enforcement of privacy claims; and balancing competing claims in substantive proposals like the Right to be Forgotten (RTBF). 相似文献
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As demonstrated by other papers on this issue, open-source intelligence (OSINT) by state authorities poses challenges for privacy protection and intellectual-property enforcement. A possible strategy to address these challenges is to adapt the design of OSINT tools to embed normative requirements, in particular legal requirements. The experience of the VIRTUOSO platform will be used to illustrate this strategy. Ideally, the technical development process of OSINT tools is combined with legal and ethical safeguards in such a way that the resulting products have a legally compliant design, are acceptable within society (social embedding), and at the same time meet in a sufficiently flexible way the varying requirements of different end-user groups. This paper uses the analytic framework of privacy design strategies (minimise, separate, aggregate, hide, inform, control, enforce, and demonstrate), arguing that two approaches for embedding legal compliance seem promising to explore in particular. One approach is the concept of revocable privacy with spread responsibility. The other approach uses a policy mark-up language to define Enterprise Privacy Policies, which determine appropriate data handling. 相似文献
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Siegel AW 《International journal of law and psychiatry》2008,31(2):150-157
The state's mental health power is standardly understood in terms of the state's power to intervene with persons or populations to address mental health problems. This article advances a more expansive view of the state's mental health power, one which seeks to capture those exercises of state power that do not directly concern mental health but that nevertheless can have a profound effect on mental well-being. The article considers two features of contemporary American society that implicate the state in conditions that undermine, or threaten to undermine, mental health. The first concerns the impact of poverty and inequality on mental health. The second concerns the threat to the self posed by measures that would significantly erode privacy. The article argues that a greater commitment to liberal principles of equality and tolerance is crucial to overcoming the perils for mental health that poverty and losses of privacy generate. 相似文献
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Paterson M 《Journal of law and medicine》2004,12(1):80-90
A shared electronic health record is intrinsically privacy-invasive because it creates a comprehensive record for information-sharing. The author explains the significance of information privacy and why it is that health information warrants special protection. She also provides an overview of the existing regulatory framework and an evaluation of suggested options and proposals for addressing privacy-related issues. Her analysis of suggested consent models suggests that they ultimately involve a trade-off between privacy and the broader benefits promised by HealthConnect and that obtaining the right balance is essential if HealthConnect is to achieve optimal health outcomes. 相似文献
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Tatelbaum MF 《Journal of health law》2002,35(2):283-290