Towards ethically sound participatory research with marginalised populations: experiences from India

Participatory research is increasingly being used with poor and marginalised populations in developing countries. However, there has been relatively little attention paid to ethical considerations in participatory research. We argue that there is a need for additional strategies to promote ethically sound participatory research, especially when working with marginalised groups. We present our experiences from a participatory research initiative with an indigenous population in rural India, in which we developed and implemented a Code of Research Ethics and sought community consent as well as individual consent. The challenges that we faced and how we attempted to overcome them are also discussed.

Dans le sens de recherches participatives robustes sur le plan éthique avec des populations marginales : expériences d'Inde

Les recherches participatives sont de plus en plus utilisées avec des populations pauvres et marginalisées dans les pays en développement. Cependant, une attention relativement faible a été accordée aux considérations éthiques dans les recherches participatives. Nous soutenons qu'il est nécessaire d'adopter des stratégies supplémentaires pour promouvoir des recherches participatives robustes sur le plan éthique, en particulier au moment de travailler avec des groupes marginalisés. Nous présentons nos expériences d'une initiative de recherche participative avec une population autochtone dans une zone rurale de l'Inde, dans le cadre de laquelle nous avons élaboré et mis au point un Code d'éthique en matière de recherche et tenté d'obtenir le consentement de la communauté ainsi que celui des individus. Les défis auxquels nous nous sommes heurtés et la manière dont nous avons tenté de les relever font aussi l'objet d'une discussion.

Em direção a uma pesquisa participativa eticamente s?lida com populaçóes marginalizadas: experiéncias da Índia

A pesquisa participativa está cada vez mais sendo utilizada com populaçóes pobres e marginalizadas em países em desenvolvimento. Porém, tem havido relativamente pouca atenção a consideraçóes éticas na pesquisa participativa. Argumentamos que há uma necessidade de estratégias adicionais para promover pesquisa participativa eticamente s?lida, especialmente quando se está trabalhando com grupos marginalizados. Apresentamos nossas experiéncias a partir de uma iniciativa de pesquisa participativa com uma população nativa na zona rural da ëndia, na qual desenvolvemos e implementamos um C?digo de èica de Pesquisa e buscamos o consentimento da comunidade e também o consentimento individual. Os desafios que enfrentamos e o modo como tentamos superá-los também são discutidos.

Hacia una investigación participativa ética con poblaciones marginadas: experiencias de India

La investigación participativa se aplica cada vez más con poblaciones pobres y marginadas de los países en desarrollo. Sin embargo, se ha prestado poca atención a los aspectos éticos de este tipo de investigación. Los autores sostienen que sería conveniente contar con nuevas estrategias para promover la investigación participativa con sólidas bases éticas, en especial a la hora de trabajar con grupos marginados. Los autores presentan los resultados de una investigación participativa con una población indígena del sector rural de India, donde elaboraron e implementaron un Código de Ética para la Investigación que incluía el consentimiento tanto comunitario como individual. El ensayo también expone cómo los autores afrontaron los retos que surgieron.     

Social construction of capabilities and intersectional complexities in a Tamil village

India is an ethnographic museum, well-known for its national motto of “unity in diversity”. It is a country of diverse hierarchies where the social reality is intersected by the varied grades of caste and class, among others. Against this backdrop, this article conceptualises the intersections of primordial identities. The concept of intersection underscores how diverse social positions interact in a Tamil village in India. As intersectionality is “the mutually constitutive relations among social identities” (Shields 2008), the interactions of caste, class, and gender in education are conceptualised to understand the formation of capabilities.     

Factors affecting access to primary health care services in Pakistan: a gender-based analysis

This article explores access to primary health care (PHC) services and associated factors in Pakistan. Data were collected from 302 respondents. The findings revealed that women accessed PHC services more than men due to their greater health needs. However, a large proportion of both genders did not access any PHC services. Besides general weaknesses, gender-related barriers were found in basic health unit locations, distance, transport, staff availability, income, service hours, and service organisation, confirming gender issues in access to PHC services. Policymakers are recommended to take measures to improve access to PHC services through the formulation of gender-responsive policies and strategies.     

Facilitating the entry of communities in the herbal medicine sector: GMCL in India

The medicinal plant sector is on the increase in many developing countries. Despite this, the existing supply chain is unable to improve the livelihoods of the gatherers. This article considers Gram Mooligai Company Limited (GMCL), the first community-based enterprise active in the herbal sector. GMCL promotes a more equitable sharing of benefits in the sector, while also aiming for a more sustainable use of natural resources. The article draws conclusions and lessons about supporting such types of enterprises, reforming the herbal-sector supply chain, and promoting new forms of partnership between ayurvedic firms and communities.     

Physically disabled women's creditworthiness in Village Development Fund: evidence from Thailand

The Village Development Fund (VDF) is used in Thailand to empower the rural poor, especially women living with disabilities. This article investigates the problems of gaining access to credit faced by physically disabled women in rural Thailand. In-depth interviews with 20 women with physical disabilities in north-eastern Thailand indicate that these women still do not benefit from small loans from the VDF because they face significant attitude barriers from the VDF chairpersons and from their own families. The author argues that non-disabled communities and their own families believe that disabilities make these women less creditworthy.

Capacité d'emprunt des femmes physiquement handicapées dans le cadre d'un Fonds de développement villageois : données de Thaïlande

Le Fonds de développement villageois (FDV) est utilisé en Thaïlande pour autonomiser les pauvres en milieu rural, en particulier les femmes handicapées. Cet article traite des problèmes rencontrés au moment d'obtenir l'accès au crédit par les femmes physiquement handicapées en milieu rural en Thaïlande. Des entretiens approfondis menés avec 20 femmes physiquement handicapées dans le nord-est de la Thaïlande indiquent que ces femmes ne profitent pas encore de petits prêts du FDV parce qu'elles se heurtent à d'importantes barrières attitudinales de la part des président(e)s du FDV et de leur propre famille. L'auteur soutient que les communautés non handicapées et leurs propres familles respectives estiment que ces femmes sont moins solvables du fait de leurs handicaps.

Capacidade financeira das mulheres deficientes físicas de obter crédito no Village Development Fund: evidências da Tailândia

O Village Development Fund (VDF) é utilizado na Tailândia para empoderar as pessoas pobres da zona rural, especialmente mulheres portadoras de deficiência. Este artigo investiga os problemas para se obter acesso a crédito enfrentados pelas mulheres deficientes físicas na zona rural da Tailândia. Entrevistas minuciosas com 20 mulheres com deficiência física no nordeste da Tailândia indicam que estas mulheres ainda não se beneficiam com os pequenos empréstimos do VDF porque elas enfrentam grandes barreiras de atitude dos coordenadores do VDF e de seus próprias famílias. O autor argumenta que comunidades não-deficientes e suas próprias famílias acreditam que a deficiência torna estas mulheres menos capazes de pagar seus empréstimos.

La solvencia crediticia de mujeres discapacitadas del Fondo de Desarrollo Comunitario (Village Development Fund): el ejemplo de Tailandia

El Fondo de Desarrollo Comunitario (FDC) promueve en Tailandia el empoderamiento de campesinos pobres, en especial de mujeres discapacitadas. Este ensayo examina los problemas que tienen las mujeres discapacitadas para obtener créditos en el área rural de Tailandia. Entrevistas a fondo a 20 mujeres con discapacidades físicas en el noreste de Tailandia mostraron que las mujeres siguen sin beneficiarse de los pequeños préstamos del FDC por las actitudes negativas de los directivos del FDC e incluso de sus propias familias. El autor sostiene que las personas sin discapacidades y los propios familiares de las mujeres con alguna discapacidad creen que por esta situación tienen menos solvencia crediticia.     

Women’s adoption of improved cook stoves in Timor-Leste: challenges and opportunities

This article examines Timorese women’s decision-making process of adoption of improved cooked stoves, using Slaski and Thurber’s conceptual framework of “motivation, affordability, and level of engagement”, developed by Slaski and Thurber (2009). Despite the obvious, evidence-based socio-economic benefits of using improved cook stoves, the majority of households still persist with their traditional cooking method. This article argues that the level of engagement with new technology needs to be contextualised in light of cultural attributes and beliefs which have led to the slow uptake of clean, efficient cooking technology.     

Combining sanitation and women's participation in water supply: an example from Rajasthan

Water supply and sanitation provision are key elements in progress towards the Millennium Development Goals (MDGs). Women's participation is considered integral to the sustainability of the projects created to meet these two MDGs. Bringing feminist and geographic critiques to bear on gendered approaches to improving sanitation coverage, the research reported on in this article indicates that latrine building and women's participation may be contradictory goals for sanitation projects, despite the fact that women are the target group for latrine-building interventions. The findings of the analysis suggest that attention must be given to latrine building as both a technical undertaking and a gendered political intervention.     

Learning from experience in urban programming: the case of the SHAHAR project in Bangladesh

The article offers a reflective analysis of various problems encountered and lessons learned in implementing a programme to improve the livelihood security of the urban poor in secondary cities of Bangladesh. The study is based on the author's involvement as an external action-research partner, and a review of relevant secondary literature. A number of key lessons emerge for the success of project operations. These are the need for (1) a clear understanding of the links between project activities and project objectives by all staff; (2) capacity building for all staff tailored to their needs; (3) clear targeting criteria and programme coverage; (4) a full complement of operational guidelines, work plans, and monitoring and evaluation design before implementation; (5) ensuring ‘partnership of organisations’ not ‘partnership of activities’; (6) ensuring the real involvement of beneficiaries in all aspects of the project; (7) staff empowerment and a flexible approach to operations; (8) routine reflections on project progress; and finally (9) being ready to take bold steps and make necessary strategic changes, even if doing so requires significant deviations from pre-set activities and hypothetical schedules as featured in the project proposals.     

NGO–business collaboration following the Indian CSR Bill 2013: trust-building collaborative social sector partnerships

The CSR Bill of 2013 introduced systematic corporate participation into social development in India. In the light of this law, this article argues that NGOs will play a decisive role in determining the benefits of corporate involvement and recommends that NGO–business partnerships are needed for meaningful social change. The article identifies a trust deficit between NGOs and businesses in India as a key obstacle to the success of NGO–business collaborations in the social sector. It suggests practices that could be adopted by NGOs to build trust in their partnerships with business partners, using a case study of one NGO, SNEHA (Society for Nutrition, Education and Health Action).     

Reflections on innovation,assessment, and social change: a SPARC case study

This article challenges the terms on which donor agencies evaluate development success, drawing on a particular case to make its point. It describes the resettlement of 60,000 people squatting along the railway tracks in Mumbai, a process planned and carried out by a federation of the railway dwellers themselves, with support from the NGO SPARC (the Society for the Promotion of Area Resource Centres). The article argues that this effort, which met donor criteria for a successful project, was the tip of an iceberg. Without an appreciation of the years of learning and innovation that preceded it, and the underpinning of principles and relationships built up over many years, this achievement cannot be adequately assessed or understood – and certainly not replicated. Yet in the world of formal assessment and evaluation, there tends to be a lack of interest in the deeper learning about social change that makes such success stories possible.     

Beyond toilets and targets: sanitation mission in India

In an attempt to address Sustainable Development Goal 6, the Government of India’s initiative, Swachh Bharat Mission (SBM), aims to make India open-defecation free by 2018. This viewpoint analyses the consequences of SBM from the perspective of women and water in the context of toilets. With the construction of toilets for 2.4 million people, the vulnerability of women is expected to worsen as available water is scarce. The viewpoint concludes that construction of toilets as a target is difficult to achieve and sustain without green technology design that overcomes the constraints of water and women.     

Decommissioning dams in India: a comparative assessment of Mullaperiyar and other cases

With the ruefully anticipated breakdown of the Mullaperiyar dam in Kerala as the central issue, this article debates the decommissioning of large dams in India. Drawing on other examples of dam breakdown and decommissioning cases from India and the USA, the author argues that dams that have failed to deliver on their promises or are in an unsafe condition should be selectively decommissioned.

Démantèlement de barrages en Inde : évaluation comparative de Mullaperiyar et d'autres cas

En prenant comme prétexte le démantèlement prévu, à regret, du barrage de Mullaperiyar dans le Kerala, cet article discute du démantèlement des grands barrages en Inde. En s'inspirant d'autres exemples de cas de pannes et de démantèlement de barrages en Inde et aux États-Unis, l'auteur soutient que les barrages qui n'ont pas tenu leurs promesses ou qui sont en état précaire devraient être démantelés sélectivement.

El desmantelamiento de represas en India: una evaluación comparativa de Mullaperiyar y de otros casos

Utilizando como pretexto la avería de la represa Mullaperiyar en Kerala, el presente artículo analiza el desmantelamiento de las grandes represas de India. Apoyándose en ejemplos de averías y desmantelamiento de represas localizadas en India y en Estados Unidos, el autor propone que aquellas represas que no hayan cumplido con las expectativas que se tenían de ellas o que se encuentren en condiciones que generen inseguridad sean desmanteladas de manera selectiva.

Desativando barragens na Índia: uma avaliação comparativa de Mullaperiyar e outros casos

Diante do rompimento, tristemente previsto, da barragem de Mullaperiyar em Kerala, este artigo debate a desativação de grandes barragens na Índia. Baseando-se em outros exemplos de rompimento e desativação de barragens da Índia e dos EUA, o autor argumenta que as barragens que têm falhado em implementar aquilo a que se propõe ou estão em condições inseguras, devem ser seletivamente desativadas.     

A market-based solution to a sanitation issue in a marginalised area

Neo-liberal ideology, as an abstract technique of self-governance and population management, is often viewed as tolerant of extreme inequality within a market economy. However, the range of policy proposals that flow from the ideology are not necessarily insensitive to development projects in marginalised areas. Sensitivity to market mechanisms may inject pragmatism in contexts where states are unable or unwilling to supply capability enhancing public goods. Through an analysis of the Center for Urban and Regional Excellence’s proof-of-concept development project in India, this article argues that a market-oriented framework can be useful in mitigating collective action problems.     

The role of self-help groups in empowering disabled women: a case study in Kathmandu Valley,Nepal

The literature on self-help groups (SHGs) shows a mixed record on empowering women both economically and socially, while the literature on Women with Disabilities (WWDs) highlights the problems of isolation that exacerbate their disadvantages. This article, asking whether SHGs can empower WWDs, is based on a study conducted in Kathmandu Valley, Nepal. It concludes that being an SHG member is useful for gaining employment that leads to better recognition in the family and society. However, employment opportunities and organisational experiences mean that the benefits are not equally shared among all members.     

Fertility differential by husbands' occupational status and income in Dhanbad district,Jharkhand, India

The paper attempts to find out fertility differential by husbands' occupational status and income level in Dhanbad district, Jharkhand (India). The mean number of children ever born (MCEB) is used to measure fertility, and monthly income as the income variable. Older and younger cohorts of women were examined separately for assessing fertility differential. MCEB was found to be high for women with husbands employed as labourers with a low monthly income. This was true for both the cohorts, but fertility levels were much higher among the older cohort. Low MCEB was found with increasing income of husbands and for those in private jobs.

Différence de fécondité en fonction du statut professionnel et du revenu des maris dans le district de Dhanbad, Jharkhand, Inde

Cet article cherche à établir des différences potentielles sur le plan de la fécondité en fonction du statut professionnel des maris et de leur niveau de revenu dans le district de Dhanbad, à Jharkhand (Inde). Le nombre moyen d'enfants par femme (NMEF) est employé pour mesurer la fécondité, et le revenu moyen comme variable de revenu. Des groupes de femmes jeunes et plus âgées ont été examinés séparément pour évaluer la différence sur le plan de la fécondité. On a constaté que le NMEF était élevé pour les femmes dont les époux travaillaient comme ouvriers et percevaient un revenu mensuel faible. Il en était ainsi des deux groupes, mais le degré de fécondité était beaucoup plus élevé parmi les membres du groupe des femmes plus âgées. Un NMEF plus faible a été constaté parmi celles dont les maris avaient des revenus supérieurs ou occupaient des postes dans le secteur privé.

Diferencial de fertilidade pela condição ocupacional dos maridos e renda no distrito de Dhanbad, Jharkhand, Índia

O artigo visa descobrir o diferencial de fertilidade em razão da condição ocupacional dos maridos e nível de renda no distrito de Dhanbad, Jharkhand (Índia). O número médio de crianças nascidas (MCEB) é utilizado para medir a fertilidade, e a renda mensal como variável de renda. Grupos de mulheres mais velhas e mais novas foram examinados separadamente para se avaliar o diferencial de fertilidade. O MCEB encontrado foi alto para mulheres com maridos empregados como trabalhadores com baixa renda mensal. Isto ocorreu em ambos os grupos, mas os níveis de fertilidade foram muito mais altos entre o grupo mais velho. Um baixo MCEB foi encontrado com a renda crescente dos maridos e para aqueles em empregos privados.

La diferencial de fertilidad según el reconocimiento profesional y los ingresos de los esposos en el distrito de Dhanbad, Jharkhand, India

Este ensayo busca establecer la diferencial de fertilidad según el reconocimiento profesional y el nivel de ingresos de los esposos en el distrito de Dhanbad, en Jharkhand, India. El número promedio de hijos nacidos (NPHN) se utilizó para medir la fertilidad y se estableció la variable de ingreso de acuerdo al ingreso mensual. Se examinaron por separado grupos de mujeres, jóvenes y mayores, para evaluar la diferencial de fertilidad. Se determinó que el NPHN era alto para las mujeres cuyos esposos trabajaban como obreros con ingresos mensuales bajos. Esta situación prevalecía en ambos grupos de mujeres, pero los niveles de fertilidad eran más altos para el grupo de mayor edad. Un NPHN bajo se asoció a esposos con ingresos más altos o con un empleo en el sector privado.     

Customary and contemporary resources for women's empowerment in Bangladesh

In Bangladesh, dramatic social and economic changes are transforming historical forms of patriarchy with various impacts on pathways to women's empowerment. We hypothesised contemporary resources would be more strongly associated with women's empowerment, as reflected in their influence in family decisions. In cross-sectional analysis, we found the contemporary resources of employment and membership in NGOs were most strongly and consistently associated with women's influence in family decisions. Education was only modestly associated, as were customary resources, including age and fertility. Programmatic efforts to enhance women's empowerment should consider the rapidly changing environment and the importance of women's economic participation.     

Social Network Analysis to evaluate organisational networks on sexual health and rights

There are many challenges in evaluating international networks. The use of conventional tools can be difficult and often provides less than useful information. Social Network Analysis offers benefits for network evaluators by allowing for documentation and analysis of inter-relationships between individuals and organisations. This paper describes the use of this approach in the evaluation of a major international project entitled the Global Dialogues on Sexual Health and Well-being. It highlights the value of maps in enabling clear visual representations of networks, the identification of areas needing greater focus and the basis on which networks are constructed.

Analyse des réseaux sociaux pour évaluer les réseaux organisationnels sur les droits et la santé génésiques

L’évaluation des réseaux internationaux présente de nombreux défis. L'utilisation d'outils conventionnels peut être difficile et fournit souvent des informations qui ne sont pas des plus utiles. L'analyse des réseaux sociaux comporte des avantages pour les évaluateurs des réseaux, car elle permet la documentation et l'analyse des corrélations entre individus et organisations. Cet article décrit l'utilisation de cette approche dans l’évaluation d'un important projet international intitulé Global Dialogues on Sexual Health and Wellbeing (Dialogues mondiaux sur la santé et le bien-être génésiques). Il met en relief la valeur des cartes pour permettre des représentations visuelles claires des réseaux, l'identification de zones nécessitant un axe central plus marqué et la base sur laquelle les réseaux sont construits.

Análise de Rede Social para avaliar redes organizacionais sobre saúde sexual e direitos

Existem muitos desafios para se avaliar as redes internacionais. O uso de ferramentas convencionais pode ser dificil e frequentemente oferece informações que não são úteis. A Análise de Rede Social oferece benefícios para avaliadores de rede ao considerar a documentação e análise das inter-relações entre indivíduos e organizações. Este artigo descreve o uso desta abordagem na avaliação de um grande projeto internacional chamado Diálogos Globais sobre Saúde Sexual e Bem-Estar. Ele destaca o valor de mapas para permitir representações visuais claras de redes, a identificação de áreas que estejam precisando de um maior enfoque e a base sobre a qual as redes são construídas.

El Análisis de Redes Sociales para evaluar redes de organizaciones que trabajan en salud y derechos sexuales

A la hora de evaluar las redes internacionales surgen muchos retos. Los métodos tradicionales pueden presentar dificultades y a menudo proporcionan información poco útil. El Análisis de Redes Sociales presenta ventajas para los evaluadores de redes ya que ofrece la posibilidad de documentar y analizar relaciones entre individuos y organizaciones. El presente ensayo examina cómo se utilizó este método para evaluar un importante proyecto internacional llamado “Diálogos globales sobre salud sexual y bienestar”. También ilustra cómo los mapas son valiosos porque muestran una clara representación visual de las redes, revelan las áreas que necesitan mayor atención y señalan las bases sobre las que se construyen las redes.     

Why does Community-Based Rehabilitation fail physically disabled women in northern Thailand?

Community-Based Rehabilitation (CBR) has been adopted in many countries to help disabled people. This article analyses the interplay between CBR and the self-alienation of physically disabled women from their communities. In-depth interviews with 40 women with physical disabilities in northern Thailand found that CBR was barely capable of enabling women with physical disabilities to realise their sense of self within their community, because in itself CBR was unable to change the community's false impression of disability. Despite participating in CBR programmes, the self-alienation of physically disabled women from their community remained; the authors argue that this was due to the heavy reliance of CBR on medical practice, ignoring gender as a major contributing factor. In addition, CBR field workers obviously failed to grasp the magnitude of social models in disability rehabilitation.     

Understanding accessibility to healthcare for elderly people in Bangladesh

Healthcare facilities for the rising number of elderly people living in rural and semi-urban areas in Bangladesh are insufficient. This article assesses the accessibility to healthcare for elderly people living in rural and semi-urban areas. Data collection was carried out using surveys, focus group discussions, and key informant interviews, and both quantitative and qualitative tools were used in analysis. Upazila hospitals, which are geographically easily accessible for elderly people in rural and semi-urban areas, have a dearth of specialist doctors to treat their chronic diseases and lack sophisticated diagnostic facilities. It is recommended that a course on gerontology be introduced in the medical curriculum to increase the number of available geriatricians, and resources allocated for sophisticated diagnostic facilities in upazila hospitals.     

Socio-economic determinants of the family history of pulmonary tuberculosis patients in Pakistan

This article aims to assess the role of important socio-economic factors in the family history of tuberculosis patients in Pakistan. Data were collected from 269 patients, and a logistic regression was used to determine the association between risk factors and the vicious circle of TB. Results of the logistic model show that significant risk factors associated with TB history in patients were education, household size, house structure, rooms in the home, room ventilation, monthly income, income food sufficiency, smoking, diabetes, and heart disease. The current TB control programme needs to formulate strategies to target specific risk factors and poverty reduction simultaneously to break the vicious circle of tuberculosis.