Donor-conceived individuals and access to information about their genetic origins: the relevance and role of rights

The discourse of rights has increasingly been used to frame debates about access to information for donor-conceived individuals. This article seeks to clarify the moral and legal basis upon which human rights are relevant to this issue. It outlines the elements of a substantive rights-based approach which is then used to resolve the competing rights of a donor and a donor-conceived individual. Three arguments are offered. First, donor anonymity must be prohibited prospectively and donor-conceived individuals must be entitled to information about their genetic parents. Secondly, a context-sensitive application of a human rights-based approach allows retrospective access to non-identifying information but precludes retrospective access to identifying information where a donor wishes to remain anonymous in circumstances where anonymity was guaranteed at the time of donation. Finally, despite this finding, a rights-based approach requires states to actively encourage such donors to consent to the release of identifying information and to take reasonable steps to support donor-conceived individuals in circumstances where donors refuse to provide their consent.     

Earmarks as evidence: a critical review.

The use of earmarks as evidence in criminal trials appears to be expanding, but there is something of a dearth of peer-reviewed scientific publications to support the pursuit. This paper is a critical review of the current literature in which we emphasize the weaknesses of the present state of knowledge. Some research directions are proposed to gather statistical knowledge of the within-source and between-source variability of earmarks and earprints. Its ultimate goal is to be able to assess likelihood ratios in relation to this type of evidence.     

The rights of donor inseminated children to know their genetic origins in Australia

Twenty years after it was recognised that adopted children have rights to understand their origins, the dawn has finally broken with respect to children conceived as a result of the Assisted Reproductive Technologies (ART), specifically donor insemination (DI). Recipients and practitioners of conception technologies focus their energies and ethical deliberation on the achievement of pregnancy and the successful birth of the child. Law, in contrast, must focus beyond birth to enshrine respect for the rights of the child, who is 'not legally capable of defending [his or her] own future interests.' This article undertakes an assessment of what is in the best interests of a child using empirical studies to ground a position that should be adopted by law in Australia. This article also critically evaluates the current legal position of the various States and Territories with regards to a DI conceived child's rights to know of their form of conception; access to identifying information of their donor; at what age they may access information; the position of DI children born before existing legislation; record-keeping; and finally whether international law grants such children rights. Australian children must enjoy the right in theory and practice to know they were donor conceived and the identity of their donor. It is disappointing that New South Wales, as the most recent State to propose legislation on ART, has not utilised international empirical research on the best interests of DI children or even followed the Infertility Treatment Act 1995 (Vic) which seems to be far more progressive in recognising how best to protect the rights of DI children. The current legal position is chaotic. States and Territories should confer power on the Federal Government to legislate uniform and explicit regulation of ART for the benefit of DI children.     

Procedural justice and police legitimacy: a systematic review of the research evidence

Objectives

We undertook a systematic review and meta-analysis to synthesize the published and unpublished empirical evidence on the impact of police-led interventions that use procedurally just dialogue focused on improving citizen perceptions of police legitimacy.

Methods

The systematic search included any public police intervention where there was a statement that the intervention involved police dialogue with citizens that either was aimed explicitly at improving police legitimacy, or used at least one core ingredient of procedural justice dialogue: police encouraging citizen participation, remaining neutral in their decision making, conveying trustworthy motives, or demonstrating dignity and respect throughout interactions. The studies included in our meta-analyses also had to include at least one direct outcome that measured legitimacy or procedural justice, or one outcome that is common in the legitimacy extant literature: citizen compliance, cooperation, confidence or satisfaction with police. We conducted separate meta-analyses, using random effects models, for each outcome.

Results

For every single one of our outcome measures, the effect of legitimacy policing was in a positive direction, and, for all but the legitimacy outcome, statistically significant. Notwithstanding the variability in the mode in which legitimacy policing is delivered (i.e., the study intervention) and the complexities around measurement of legitimacy outcomes, our review shows that the dialogue component of front-line police-led interventions is an important vehicle for promoting citizen satisfaction, confidence, compliance and cooperation with the police, and for enhancing perceptions of procedural justice.

Conclusions

In practical terms, our research shows the benefits of police using dialogue that adopts at least one of the principles of procedural justice as a component part of any type of police intervention, whether as part of routine police activity or as part of a defined police crime control program. Our review provides evidence that legitimacy policing is an important precursor for improving the capacity of policing to prevent and control crime.     

The legal and administrative processes in adoption: views and experiences of newly formed adoptive families

The early stages of adoptive placements are important in achieving successful long-term outcomes for adopted children and their families. This paper reports on findings from the Wales Adoption Study, in which adoptive parents shared their views and experiences of the legal and administrative processes in obtaining an adoption order. Parents described a range of difficulties that added to anxieties and delays. These arose mainly through poor communication about the steps in the legal process and avoidable administrative errors or oversights. Some parents also experienced lack of information and support regarding agreed contact arrangements and work with their child to help them make sense of their adoptive status.     

Other people's money: a reply to the Joint Commission

In a response to Professor Liang's earlier article expressing concern regarding the Joint Commission's Sentinel Event Policy ("SEP"), the General Counsel of the Joint Commission disagreed with the criticisms of the SEP. In this Comment, Professor Liang replies to the Commission's position, indicates that resources devoted to legal issues created by the SEP are not available for patient safety, and that the goal of patient safety may be better served by focusing on near misses rather than sentinel events. Finally, he concludes that the Joint Commission and its critics have the same ultimate goal, and that a cooperative approach which includes federal legislation to protect safety information is essential.     

Fingerprints as evidence for a genetic profile: morphological study on fingerprints and analysis of exogenous and individual factors affecting DNA typing

Material recovered from 374 fingerprints left by eleven laboratory workers on three different substrates (glass, wood, metal) at a standard pressure time of 30 s, with and without preliminary handwashing, was submitted to morphological, quantitative, and type analysis. Morphological and agarose-gel electrophoresis analysis showed that a non-negligible amount of epidermal corneal cells presented apoptotic alterations. The quantity of DNA recovered from fingerprints ranged between 0.04 to 0.2 ng, and in a significant number of experiments no DNA was detected. Handwashing reduced the amount of DNA recovered from fingerprints. The "shedder status" of the donor was a very important factor, causing inter-individual variations in the amount of DNA left by fingerprints. Spurious alleles from laboratory-based and secondary transfer contamination, stutters, and other artifacts described when analyzing low-copy-number DNA and capable of affecting correct profiles were observed.     

Criminal victimization in contemporary China: a review of the evidence and challenges for future research

The rapid economic growth in China over recent decades has been accompanied by higher levels of crime, but there have been few studies of the Chinese experience of criminal victimization. A recent victimization survey of a representative sample of households in Tianjin represents a major effort to fill this gap in the literature. The present paper reviews the research based on the Tianjin survey along with other studies of crime and criminal victimization in China that have been published since 1990. We summarize the major findings, discuss the theoretical perspectives and methodological strategies that have been applied, identify the limitations of the research to date, and offer suggestions for future research.

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Women's accounts of their prison experiences: A retrospective view of their subjective realities

This article examines the subjective experiences of previously imprisoned women. Their retrospective narratives of prison life reveal overt behavioral and underlying structural tensions that create an atmosphere of fear and violence. Furthermore, attitudes of indifference between inmates and correctional staff often contribute to fostering an environment of neglect. The study, based on in-depth interviews with fifty-four female subjects, describes and analyzes several aspects of the socialization process for inmates as related by women on parole. The research shows that the “pains of imprisonment” for women are suffered to a greater degree than previously acknowledged. Prison for these women is a social world filled with anxiety and, perhaps, represents a punishment well beyond what the law intended.     

Misusing informed consent: a critique of limitations on research subjects' access to genetic research results

Express denials of access to genetic research results are being drafted into consent instruments. Some commentators suggest that the principle of beneficence can justify such a denial of access. This paper provides an ethical and legal critique of the use of consent instruments to disclaim responsibility for on-going disclosure by genetic researchers. Currently, the law of torts provides only weak protection for on-going disclosure for research subjects. The most substantive rights are to be found in the law of fiduciary obligations. The author concludes that, notwithstanding arguments to the contrary, there should be a presumption of disclosure in genetic research, unless the research subject elects otherwise. The author outlines one possible exception to this general presumption.     

Drug and violence prevention: Rediscovering the critical rational dimension of evaluation research

Following criticism of government-funded drug prevention activities of the early 1990s, a spate of best practice or science-based lists of alcohol, drug and violence prevention programs have been produced by federal agencies in recent years. The writings of Donald T. Campbell on validity have had a profound influence on the development of the methodological quality scales that have been utilized in the review processes used to generate these lists. Implicit in this approach to the identification of science-based prevention programs is the idea that science is equivalent to research methodology and study design. Following Karl Popper and Campbell, I contend that, while certain designs are clearly better than others in dealing with threats to internal validity and allow for better generalization of results beyond the study population, utilization of these designs in and of itself is not sufficient to designate an evaluation study as scientific. Nor can the accumulation of data from such studies be used to proclaim an entire area of research a science, as has occurred with the field of so-called prevention science. Rather, the fundamental criterion by which to judge the scientific status of a theory is falsifiability. If the field of drug and violence prevention is truly a science, then it should be subjecting its predictions about the effects of intervention programs to genuinely critical tests and not attempting to verify these hypotheses. It is argued that it has failed to do this, and two specific examples of prevention programs that appear on a number of science-based lists of prevention programs are discussed.