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Kiah I. Van der Loos Holly Longstaff Alice Virani Judy Illes 《Journal of Law and the Biosciences》2015,2(1):69-78
Disasters such as flash flooding, mass shootings, and train and airplane accidents involving large numbers of victims produce significant opportunity for research in the biosciences. This opportunity exists in the extreme tails of life events, however, during which decisions about life and death, valuing and foregoing, speed and patience, trust and distrust, are tested simultaneously and abundantly. The press and urgency of these scenarios may also challenge the ability of researchers to comprehensively deliver information about the purposes of a study, risks, benefits, and alternatives. Under these circumstances, we argue that acquiring consent for the immediate use of data that are not time sensitive represents a gap in the protection of human study participants. In response, we offer a two-tiered model of consent that allows for data collected in real-time to be held in escrow until the acute post-disaster window has closed. Such a model not only respects the fundamental tenet of consent in research, but also enables such research to take place in an ethically defensible manner. 相似文献
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Kiah I. Van der Loos Holly Longstaff Alice Virani Judy Illes 《Journal of Law and the Biosciences》2015,2(3):768-770
In this paper, we reply to Taylor''s (2015) peer commentary on consent-in-escrow. Specifically, we clarify the utility of this novel approach, the way in which it minimizes risks to participants, and how it differs from existing opt-out methods. We further explore its potential use in fields beyond disaster research. 相似文献
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Jennifer C. Seely Emma Diambogne Diouf Charlotte-Anne Malischewski Maria Vaikath Kiah Young-Burns 《Citizenship Studies》2013,17(3-4):429-446
In recent publications, Manby (2009, 2010) has pointed out serious inequities in African citizenship laws. As women are one of the largest groups at risk of unequal treatment, we systematically examine sub-Saharan African citizenship laws for discriminatory provisions and language. We find that for laws currently in force, legal treatment of women is uneven, both across the continent and within countries. We consider the role gender plays in transmitting citizenship to children, as well as differences between the genders in citizenship transmitted through marriage. Some countries are gender neutral in most or all aspects of the law, others are gender neutral with respect to parents and children but favor men in transmitting citizenship to their wives, and others still discount the role of women in both respects. We employ quantitative methods to understand the background conditions that influence citizenship law, finding that temporal and demographic factors have some systematic influence. To understand when and how citizenship laws may change, we examine case study evidence of women's movements as a means for bringing about gender equality, finding that targeted legal action or major constitutional overhauls can help render citizenship laws more gender neutral. 相似文献
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