A profile of children with disabilities receiving SSI: highlights from the National Survey of SSI Children and Families

This article provides a nationally representative profile of noninstitutionalized children 0 to 17 years of age who were receiving support from the Supplemental Security Income (SSI) program because of a disability. To assess the role of the SSI program in providing assistance to low-income children with disabilities and their families, it is important to obtain detailed information on demographic characteristics, income and assets, health and disabilities, and health care utilization. Yet administrative records of the Social Security Administration do not contain many of the relevant data items, and the records provide only an incomplete picture of the family relationships affecting the lives of children with disabilities. The National Survey of SSI Children and Families fills this gap. This summary article is based on survey interviews conducted between July 2001 and June 2002 and provides some highlights characterizing children with disabilities who were receiving SSI and their families. Most children receiving SSI (hereafter referred to as "SSI children") lived in a family headed by a single mother, and less than one in three lived with both parents. A very high proportion, about half, were living in a household with at least one other individual reported to have had a disability. About 70 percent of children received some kind of special education. SSI support was the most important source of family income, with earnings a close second. On average, SSI payments accounted for nearly half of the income for the children's families, and earnings accounted for almost 40 percent. When all sources of family income were considered, slightly more than half (54 percent) of SSI children lived in families above the poverty threshold, a notable fact given that the federal SSI program guarantees only a subpoverty level of income. However, beyond these averages there was substantial variation, with some children living in families with income well below the poverty threshold and others having income well over 200 percent of the poverty threshold. About one-third of SSI children lived in families owning a home, two-thirds lived with parents or guardians with at least one car, and about 40 percent lived with parents or guardians with zero liquid assets. Less than 4 percent lived with adults who owned stocks, mutual funds, notes, certificates of deposit, or savings bonds. The Social Security Administration's administrative records contain only a limited amount of information about disability diagnoses. The National Survey of SSI Children and Families supplements those records with data from an array of questions on functional limitations, self-reported health, and the perceived severity of disabilities. The data suggest that a great degree of variation in severity exists within the childhood caseload, as reflected in reports of the presence or absence of six functional limitations, perceived overall health status, and perceived impact of disability on the child's ability to do things. Overall, 36 percent of the children were reported to have had disabilities that affected their abilities to do things "a great deal," and for 21 percent their difficulties had very little or no impact. Physical disabilities were most common among children aged 0 to 5, and mental disabilities dominated the picture for the other two age groups: 6 to 12 and 13 to 17. Virtually all SSI children are covered by some form of health insurance, with Medicaid being by far the most common source of health insurance coverage. Just as in the case of the severity of disabilities, substantial variation was reported in health care utilization among SSI children. Almost 30 percent of children had two or fewer doctor visits during the 12 months preceding the interview, and close to 50 percent had five or more doctor visits. About four-fifths of the children had no reported hospitalizations or surgeries during the previous year. More than 40 percent of the children visited an emergency room during the previous year, most of them more than once. Importantly, no out-of-pocket costs associated with medical care were reported for more than two-thirds of the children, and only about 3 percent had annual expenses exceeding $1,000 for physical and mental health care. This finding suggests that SSI payments are not used to cover medical expenses for the overwhelming majority of children. The use of supportive therapies varied widely among SSI children: more than half reported having used physical, occupational, or speech therapy; only 8 percent used respite care for the parents or other family members. An analysis of the perception of the survey respondents shows that more than one-third of children had unmet needs for mental health counseling services, and about three-quarters of families had unmet needs for respite care. In several service categories, the proportion perceived to have had unmet service needs was around 10 percent or less. In the dominant service category of physical, occupational, and speech therapy, only 11 percent perceived to have had unmet service needs.     

Characterisation of variant alleles at the HumD21S11 locus implies unique Australasian genotypes and re-classification of nomenclature guidelines

Several variant alleles of the HumD21S11 locus have only been reported in Australasian population samples. Fifteen such alleles were observed in Caucasian and Australian Aborigine sub-population databases compiled from residents of the state of Western Australia. Each variant was sequenced to authenticate the allelic designation and determine the structural conformation. Nine novel structural variants are described. The structure of the repeat region of these rare alleles combined with the STR designation brings aspects of the HumD21S11 nomenclature guidelines into question, in particular the designation of common incomplete repeats (or "0.2's"). The conformation of the sequences provides evidence in support of a genetic relationship between the Australian Aborigine and the Papuan people.     

Reviews

Susan Gross Solomon (ed.), Pluralism in the Soviet Union. Essays in Honour of H. Gordon Skilling. London: Macmillan, 1983, xiii + 179 pp. £20.00.

George Yaney. The Urge to Mobilize: Agrarian Reform in Russia, 1861–1930. Urbana, Chicago, London: University of Illinois Press, 1982, xii + 599 pp. £18.75.

Roy Medvedev, All Stalin's Men. Translated by Harold Shukman. Oxford: Basil Blackwell, 1983, x + 184 pp. £8.95.

Robert F. Byrnes (ed.), After Brezhnev: Sources of Soviet Conduct in the 1980s. London: Frances Pinter, 1983, xviii + 457 pp., bibliography and index, h/b £16.50, p/b £6.95.

Basile Kerblay, Modern Soviet Society (translated by Rupert Swyer). London: Methuen, 1983, xxvi + 321 pp. h/b £16.00, p/b £7.95.

Max Hayward, Writers in Russia: 1917–1978. Edited and with an introduction by Patricia Blake. London: Harvill Press, 1983, lxxvi + 340 pp. £7.95.

Dina R. Spechler. Permitted Dissent in the USSR. Novy mir and the Soviet Regime. New York: Praeger, 1982, xxiv + 296 pp. $27.95.

Everett M. Jacobs (ed.), Soviet Local Politics and Government, London: George Allen & Unwin, 1983, xiv + 225 pp. £15.00, $28.50.

Alan H. Smith, The Planned Economies of Eastern Europe. London: Croom Helm, 1983, 249 pp. £16.95.

John Löwenhardt, The Soviet Politburo. Translated by Dymphna Clark, Edinburgh: Canongate, 1982, 152 pp. £7.95.

Stephen Clissold, Djilas: the progress of a revolutionary. Introduction by Hugh Setton‐Watson. London: Temple Smith, 1983, 343 pp. £15.00.

Steven L. Burg, Conflict and Cohesion in Socialist Yugoslavia: Political Decision Making Since 1966. Princeton, N. J.: Princeton U. P., 1983, xii + 365 pp. $49.00.

Elizabeth Kridl Valkenier: The Soviet Union and the Third World. New York: Praeger, 1983, 185 pp. $21.95.

Dorothy Atkinson, The End Of The Russian Land Commune, 1905–30. Stanford, Calf.: Stanford UP, 1983, xii + 457 pp. $29.50.

Alain Touraine, et al., Solidarity: Poland 1980–81, Cambridge and Paris: CUP jointly with Editions de la Maison des Sciences de l'Homme, 1983, xvii + 203 pp. paperback £6.95.     

Reviews

Gert Leptin and Manfred Melzer, Economic Reforms in East German Industry, London, OUP, 1978, xxv + 200 pp. £12.00.

Jiri Kosta, Abriss der sozialökonomischen Entwicklung der Tschechoslowakei 1945–1977 (An Outline of the Socio‐Economic Development of Czechoslovakia 1945–1977), Edition Suhrkamp No. 974, Suhrkamp Verlag, Frankfurt am Main 1978, 217 pp.

Vladimir V. Kusin, From Dub?ek to Charter 77: A study of ‘normalisation’ in Czechoslovakia 1968–1978. Edinburgh: Q Press, 1978. x + 353 pp. £8.50.

Leon Boim and Glenn G. Morgan (ed. & trans.), The Soviet Procuracy Protests: 1937–1973; A Collection of Translations. Alphen aan den Rijn: Sijthoff & Noordhoff, 1978. xvi + 603 pp. Dfl. 190.00/$88.50.

Gordon B. Smith, The Soviet Procuracy and the Supervision of Administration. Alphen aan den Rijn: Sijthoff and Noordhoff, 1978. xii + 154 pp. Dfl. 55.00/$25.50.

Peter Kenez, Civil War in South Russia, 1919–1920: The Defeat of the Whites. Berkeley: University of California Press, 1977. $17.50; £12.25.

Kendall E. Bailes, Technology and Society under Lenin and Stalin: Origins of the Soviet Technical Intelligentsia, 1917–1941. Princeton, N.J.: Princeton U.P., 1978. xiii + 472 pp. £20.10.

Delia W. Sheldon (ed.), Dimensions of Détente, New York: Praeger Publishers, 1978, 221 pp.

George Ginsburgs and Alvin Z. Rubinstein (eds.), Soviet Foreign Policy Toward Western Europe, New York: Praeger Publishers, 1978, 295 pp.

Malcolm Lader, Psychiatry on Trial, Penguin Books Ltd., 1977. 201 pp. 80p.

George F. Putnam, Russian Alternatives to Marxism: Christian Socialism and Idealistic Liberalism in Twentieth‐Century Russia. Knoxville: University of Tennessee, 1977. xii + 233 pp. $13.50.

A. Nekrich, Otreshis’ ot strakha. Overseas Publication Interchange Ltd., London, 1979. 414 pp.

Aron Katsenelinboigen, Studies in Soviet Economic Planning. New York: M. E. Sharpe, 1978. xiii + 229 pp. $22.50.

Walter D. Connor & Zvi Y. Gitelman (eds.), Public Opinion in European Socialist Systems. New York & London: Praeger Special Studies, 1977. ix + 196 pp.

Mervyn Matthews, Privilege in the Soviet Union: A Study of Elite Life‐Styles under Communism. London: George Allen & Unwin, 1978. 193 pp. £6.95.

Barbara Evans Clements, Bolshevik Feminist. The Life of Aleksandra Kollontai. Bloomington and London: Indiana University Press, 1979. 352 pp. $15.00.     

The Dark Figure of Online Property Crime: Is Cyberspace Hiding a Crime Wave?

A pronounced drop in crime, since the early 1990s, has encompassed every crime category tracked by the FBI’s Uniform Crime Reports, including property crime. However, over the same period, the rates of online property crime (OPC) have been on the rise according to available evidence. We delineate the extent of our knowledge and data concerning cybercrime and identity theft and, using data from several nationally representative victimization surveys, offer an alternative view of property crime trends while pointing out the glaring gap in crime reporting and accounting in relation to the growing category of property crimes perpetrated online. In addition, we compare estimated costs of traditional property crime vs. OPC. Finally, we identify the main challenges for obtaining reliable data on OPC and discuss their implications, especially when applying the traditional methods of compiling crime statistics.     

The Ubiquitous Family Environment: Examining Emotional Insecurity in the Family and Adjustment in School

The present study examines adolescents' emotional insecurity and problem behaviors at school. Adolescents (n = 280; 136 boys, 144 girls, Median age = 13) and their parents reported on adolescents' emotional security and adjustment problems. Adolescents' teachers (n = 240) also reported on adolescents' school adjustment. Results support that emotional insecurity is related to adjustment problems in the home and at school. Emotional insecurity in the family system was a better predictor of adolescents' adjustment problems than emotional insecurity in the interparental relationship. Findings have implications for teachers, parents, school administrators and policy‐makers, as adolescents' problem behaviors at school can be explained by their emotional insecurity.