An empirical study of tissue banking in Australia: navigating regulatory and ethical challenges

Collections of tumour samples can be an invaluable resource for medical research. There are, however, numerous ethical and legal challenges associated with tumour banking. While there has been extensive discussion of these issues in the legal and ethical literature, there are few available empirical data in relation to the activities of tumour banks in Australia, their practices around ethically charged issues, and their success in implementing complex regulatory guidelines. The aim of this study was to gain more information about the activities of tumour banks in New South Wales, Australia, with a particular focus on their management of, and attitudes towards, ethical and regulatory issues. A survey of 27 tumour collection and research facilities was conducted using a 55-item questionnaire. There is significant heterogeneity of research methodologies as well as of methods for gaining consent and ensuring donor privacy, and there is general concern among the research community about ethical and regulatory issues related to tumour banking. Heterogeneity of practice and uncertainty about ethical and regulatory requirements is problematic in its potential to hinder research and its potential to generate the space for unethical practice, whether intentional or unintentional. There is a pressing need to address these issues so that tumour banks can be used in the most ethical and efficient way possible.     

LEGISLATING FOR PARENTAL ACCESS TO CHILDREN IN CARE

Parental access to children absent in state care is an emotive issue. This article looks at the role of legisiation in recent attempts in Great Britain to improve the situation.     

Joseph Stiglitz: The Citizen-Bureaucrat and the Limits of Legitimate Dissent

Since being forced to resign his high-ranking post at the World Bank in 2000 for publicly dissenting from neoliberal ideas, Joseph Stiglitz has become a global policy celebrity, celebrated as the “Rebel Within.” While much has been said about his neo-Keynesian policy framework, little has been done to explore the political significance of his iconic status as a renowned “citizen-bureaucrat.” Yet, Stiglitz's iconic image in many ways has had a greater political impact than his policy ideas. In a world in which government and corporate bureaucracies increasingly squeeze out alternative visions, the citizen-bureaucrat suggests that space still exists within these unwieldy bureaucracies for the independent-thinker to put forward a rebellious agenda. Through an assessment of Stiglitz's policy career, this article argues that the image of the citizen-bureaucrat is, to a large extent, an ideological fantasy that masks a more uncomfortable political reality: that the available options for the “good bureaucrat” in today's neoliberal era, far from expanding, are more narrow than ever before.     

Law reform

This article provides an overview on the structure and guiding principles of the new Law Commission of Ontario and considers the present state of law reform at the provincial level. The author suggests that the establishment of the Ontario agency continues a trend that started about a decade ago with provincial governments reversing earlier decisions to either close down or cut funding to agencies. ^{1 1} Gavin Murphy, ‘The Rise, Decline and Current Status of Canada’s Law Reform Agencies’ (2004) 30 CLB 900. He indicates that the launch of the Law Commission of Ontario is a positive development and could signal further interest and renewed support for provincial law reform in Canada. The article also examines the history, mandate and work of the Scottish Law Commission and concludes that the challenges it faces are similar to those confronting Canada’s provincial law reform agencies.