The politics of ‘wrongful life’ itself: discursive (mal)practices and Tay-Sachs disease

Abstract

This article examines eight wrongful life/wrongful birth suits filed by parents of children born with Tay-Sachs disease. Their legal claims are analysed in terms of the biopolitics of genetic risk that has emerged in recent decades with a view to arguing that, as health and disease are increasingly understood within a genetics framework, the individual is becoming responsibilized to be proactive and undergo genetic testing. At the same time, this responsibilization is being defined as a kind of entitlement rooted in historically specific ideas about personhood and quality of life. The only option for reconciling this contradiction has been simply to define responsibilization as the individual's right, thereby calling into question the notion of agency in genetic decision-making and revealing that choice in this context is in fact becoming the unfreedom to choose.     

The seductive quality of central human capabilities: sociological insights into Nussbaum and Sen's disagreement

Abstract

In an era when relativism and questions of modernity have unsettled the premises and goals of the development project, there is a seductive quality to the universalism of Nussbaum's capabilities approach. We query Nussbaum's philosophically based contribution and raise epistemological concerns about her commitment to a list of central human capabilities. We argue that attention to state forms and practices, as well as unequal power relations, must be incorporated into analyses of capability and development. This leads us to support Sen's advocacy of deliberative democracy as a productive space for collectivities and individuals to strive for social justice and equity. Such a focus is necessarily attentive to multiple forms of inequality and domination and is best understood by engaging historically specific analyses of state formations.     

Stature estimation of 3-10-year-old children from long bone lengths

Estimation of stature in adult forensic cases with available long bones of the limbs is routine, but such estimation is less common in subadult cases. Long bones from subadult cases are often used to estimate age, but in some instances stature may be helpful or even critical for identification. Few published regression equations exist for consultation in such cases. Data from the longitudinal growth study conducted by the Child Research Council in Denver in the mid-1900s are utilized to produce dual-sex and single-sex regression equations for the six long bones of the limbs (humerus, radius, ulna, femur, tibia, and fibula) and for the combined femur+tibia length. All measurements are from radiographs and are of diaphyseal length. Examples show that similar results can be obtained using a two-step process of "ballpark" estimation from published tables of the Denver data, but these new regressions allow a one-step standard error estimate for the means. Regressions are further compared with those previously published by Finnish researchers, which are generally broadly comparable. More routine stature estimation in subadult cases is encouraged both as an aid to possible identification and as a test of the available regression equations.     

Taiwan's Presidential and Legislative Elections

Taiwan's newly-elected president, Ma Ying-jeou, is determined to relax the tension that has gripped the Taiwan Strait for more than a decade. His positions during the election campaign were calculated to reassure both the Beijing government and the Taiwanese people. On the one hand, he made it clear that he would remove barriers to improved relations and reach out to the Chinese leadership. At the same time, he was equally clear in his commitment to protecting Taiwan's interests. Ma's positions strike a balance between preserving Taiwan's de facto political independence and moving toward a more constructive relationship with the mainland. This approach enjoys widespread popular support in Taiwan. Still, the devil is in the details, and implementing Ma's ideas will require cooperation from Beijing, and from other political actors within Taiwan itself.     

A new technique for three-dimensional ultrasound scanning of facial tissues

We report the development of an ultrasonic facial scanning technique that allows for the visualization of continuous contours without deforming surface tissues. Adhesive markers are placed on the face to enable measurement of facial tissue thicknesses at specific landmarks. The subject immerses the face in a clear plastic box filled with water for about 20 seconds while the researcher moves the transducer along the bottom of the box, guiding transducer movement by watching the facial image in a mirror placed below. 3D Echotech software (1) builds the images from sequentially acquired 2D frames. Reliability of repeat measurements at landmarks is good, and individual tissues (skin, subcutaneous, muscle) can be distinguished. The method is simple, reliable, less expensive and less time consuming than alternatives such as magnetic resonance imaging (MRI). It is applicable in both research and clinical contexts.