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Dreams and Nightmares: Practical and Ethical Issues for Patients and Physicians Using Personal Health Records
Authors:Matthew Wynia   Kyle Dunn
Affiliation:Director of the Institute for Ethics at the American Medical Association and a Clinical Assistant Professor at the University of Chicago.;Research Assistant at the Institute for Ethics at the American Medical Association and is now a Ph.D. candidate in the Department of Health Policy and Management at the Johns Hopkins Bloomberg School of Public Health.
Abstract:Electronic health records for patients, personal health records (PHRs), have become increasingly popular among policy makers and purchasers, but uptake among patients and physicians has been relatively slow. PHRs have varying uses that might make them more or less appealing to different stakeholders. The three core uses for PHRs — promoting communication, data use, and patient responsibility — each raises a set of potential practical and financial dilemmas. But some ethical concerns are also at play, some of which are rarely recognized as values-based barriers to the use of PHRs. Recognizing these ethical issues, and addressing them explicitly in PHR design and policy making, would help PHRs to achieve their promise.
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