Beyond 'Do No Harm': The Challenge of Constructing Ethical Relationships in Refugee Research

This paper highlights some of the central ethical challengesinvolved in undertaking social science research with refugeesin conflict and crisis situations. It focuses on two main setsof challenges: first, the difficulties of constructing an ethicalconsent process and obtaining genuinely informed consent; andsecond, taking fully into account and responding to refugeeparticipants' capacities for autonomy. The authors also discussthe challenges involved in applying the central normative principlesgoverning ethics review processes—the principles of beneficence,integrity, respect for persons, autonomy and justice—tothe context of refugee research. It is argued that researchersshould seek ways to move beyond harm minimization as a standardfor ethical research and recognize an obligation to design andconduct research projects that aim to bring about reciprocalbenefits for refugee participants and/or communities. Some ofthe methodological issues raised by this analysis are discussedin the conclusion.     

中国行政诉讼调解制度的现状与课题

对制度的设计者来说 ,建立完备的行政纠纷解决方式的体系 ,是保障行政相对人的合法权益 ,促进行政机关依法行政的必然要求。为制度的使用者考量 ,也应建立多种纠纷解决方式 ,从而落实当事人的程序选择权。面对行政诉讼调解制度出现的困境 ,中国行政诉讼制度的重构需要解决一些重要的课题 ,如在调解中怎样实现自愿与平等协商 ,如何实现调解与审判的协调 ,如何保障当事人的反悔权利以及和解契约的拘束力问题等等     

Reciprocity and rape: Blackness and the paradox of sexual violence

This essay expands Saidiya Hartman's unflinching paradigmatic analysis in Scenes of Subjection of the modes of historical continuity in which Black women are barred from reciprocity, recognition, and incorporation ab initio (Hartman, Saidiya V. 1997. Scenes of Subjection: Terror, Slavery, and Self-Making in Nineteenth-Century America. New York: Oxford University Press.). By engaging the works of key Marxist feminist theorist Leopoldina Fortunati, I will demystify the ways in which these three homologies which non-Black women depend upon for the coherence of their complaint are parasitic on the flesh of Black women and men.     

The most plausible pro-coercion view: requiring informed agreement while penalizing non-participation in research

In ‘(Why) should we require consent to research?’ Alan Wertheimer probes whether it is legitimate for the government to ‘coerce’ people into participating in biomedical research, including interventional biomedical research. In debating the rules that ought to govern participation in interventional biomedical research, we should distinguish two separate moral claims. First, interventional research should proceed only when the subject has given her informed agreement. Second, it is legitimate for the state to set a requirement that people participate in interventional biomedical research, and to penalize or punish those who refuse to participate. The most plausible ‘pro-coercion’ view accepts both of these claims. Though I stop short of endorsing this view, it captures important ‘pro-coercion’ and ‘anti-coercion’ intuitions.     

Land reforms and voluntary resettlement: household participation and attrition rates in Malawi

ABSTRACT

This paper examines the factors influencing household participation in and withdrawal from a World Bank-funded voluntary resettlement scheme moving 15,000 low-income farming households within and across rural districts in Malawi. Using a survey of 203 beneficiary households, focus groups and in-depth interviews, we identify a lack of access to land and conflict over land in the area of origin as salient participation factors in resettlement, while withdrawal factors include lower access to infrastructure and poor soil quality in resettlement areas. We also highlight limited prior awareness of actual conditions in resettlement areas, low and biased participation in the decision to move, a greater desire for formal land titles due to loss of customary entitlement as a result of resettlement, and widespread ambiguity and confusion over titles for resettled plots. In this context, we point to a pattern of ‘negative resettlement’, in which households remain resettled despite major grievances, for lack of an alternative option, contrasting with ‘positive resettlement’, where households remain by choice. We suggest that intra-district resettlement is more likely to be successful than inter-district resettlement when there is a risk of informed consent deficiency. These findings point to the relative failures of this particular resettlement scheme, and suggest possible improvements for land redistribution schemes from agro-industrial projects to poor households.     

Harm,Consent and the Limits of Privacy

Within the context of U.K. law, the right to respect for private life, articulated in Article 8 of the European Convention on Human Rights, and acknowledged more opaquely in domestic legislation and case law, is one whose scope is unclear. Nowhere is this brought into sharper relief than in cases where conduct which manifests a person’s sexual identity, or concerns her intimate relations with others, is prima facie criminal. In this essay I attempt, through a discussion of cases in which injury is caused in the context of relationships experienced inter-subjectively as private, to explore the contexts in which the law is prepared to legitimate that inter-subjective experience, and where it is not. Using cases in which injury has been caused purposively (in S/M sex), and incidentally (through the reckless transmission of HIV during sexual intercourse), the essay argues that the law is prepared to respect the right to respect for private life only in so far as the private life concerned is one which reinforces traditional gender roles and relationship types; in short, a life that one would be prepared to live publicly.     

知情同意原则下医疗过失损害赔偿责任的几个问题--从一起患者知情同意纠纷案说起

知情同意原则所保护的客体是自我决定权.知情同意原则下的损害赔偿责任不同于医疗事故损害赔偿责任.二者不能互相否认.医方违反知情同意原则的责任是一种侵权损害赔偿责任.该责任的构成要件可包括(1)医师存在法定的告知义务;(2)医师未能将对患者的决定产生实质性影响的风险/信息告知患者;(3)在告知不充分的情况下,患者由于选择了当前的治疗方案而受到伤害;(4)医师的义务违反与患者的伤害之间存在因果关系.其中,告知义务是否充分的判断应以处于同样情境的一个理性患者所需作为主要的标准;对信息"实质性"的判定应看一个与患者处于同一位置的合理审慎之人在决定是否对所建议的治疗做出同意时会对某一事实赋加重要性或将该事实作为一"决定性"影响因素加以考虑;在因果关系存无的认定上,则要考虑若患者被充分告知实情他是否会做出不同的选择决定.     

Intoxicated Consent in Rape: Bree and Juror Decision-Making

The article examines the recent Court of Appeal judgment in Bree, in which the court considered the guidance that should be given to a jury when the complainant is intoxicated at the time of an alleged rape. As well as analysing the reasoning of the court in Bree, the judgment is placed in context by examining factors, such as social attitudes, that influence juror decision-making in rape cases. It also examines the suggestion made by the court in Bree that further law reform in this area would represent 'patronising interference' in the lives of women.     

Unfulfilled promises of the consultation approach: the limits to effective indigenous participation in Bolivia’s and Peru’s extractive industries

Indigenous peoples’ right to prior consultation and to informed consent represents the basis of the new global model shaping state–indigenous relations. Consultation processes promise to enable indigenous people to determine their own development and are especially promoted when extraction projects with significant socio-environmental impacts are planned on indigenous lands. In this article we draw on debates on participatory development in order to analyse the first state-led consultations in Bolivia’s and Peru’s hydrocarbon sectors (2007–14). The analysis shows that effective participation has been limited by (1) an absence of indigenous ownership of the processes; (2) indigenous groups’ difficulties defending or even articulating their own visions and demands; and (3) limited or very general outcomes. The study identifies real-life challenges, such as power asymmetries, a ‘communication hurdle’ and appropriate timing – as well as simplistic assumptions underlying the consultation approach – that account for the unfulfilled promises of this new model.     

Utilitarianism of Big Data in Public Health Care

Big data in public health care is fundamental strategic resource of the country. In order to promote the development of its industrialization, we should make clear the regulatory model of utilitarianism of big data in public health care, and settle the conflict between the active utilization and the principle of informed consent. China's legislation ought to encourage the active use of big data in public health care, so as to settle the conflict between the use and protection of big data in public health care through the flexible use of the principle of informed consent and the introduction of alternative or supplementary protection mechanisms. And we should guarantee thatthe big data resource will be applied appropriately.This article also presents a systematical classification method of big data in public health care, clarifies principle stipulations, and discusses some exceptional cases.